Meet our September
Friends of the Month!
We love celebrating these amazing kids all month long through our social media pages and special gifts through the mail. Read their amazing stories below!
Kaden-
Kaden was born with an omphalocele in October of 2021. He spent 3.5 months in the NICU and then PCCU. He came home on breathing support and a feeding tube and his O being unrepaired but having some skin coverage.
He never crawled but he always got around by bum scooting until he learned to walk at age 2.
He is now almost 3, he was able to get off of the breathing support and switched from an NG to a G tube in December of 2023. He had one surgery in December as well and we are currently waiting for additional closure surgeries.
He loves cars, construction vehicles, playing any sports but especially soccer and ball hockey, watching paw patrol and Blippi and hanging out with his family and friends, including his two dogs.
While Kaden’s ompahlocele and his medical journey are a very important part of him, there is so much more that makes him who he is. He continues to amaze us with how far he has come!
Colette-
At 18 weeks we found out Colette had Hypoplastic Left Heart Syndrome and at 20 weeks, Trisomy 6p Unique. Weekly MFM OB appointments, they held their breath if she was still alive and told us to prepare bags at 22 weeks to have to deliver her.
She came at 39w5d, due to her heart rate going from normal to zero, in an emergency c-section at Dell Children’s Hospital, in Austin, TX where we moved at 35 weeks to have her. Monday she was a scheduled induction, instead, it was the day she died at 9:03pm, while her Mama held her and her daddy next, stroking her hair.
Myles-
Myles is a feisty, loving, and rambunctious 2 year old. He loves to make friends and provide free smiles wherever he goes. Myles was born with Trisomy 21, a complete AV Canal Defect, an Aortic Coarctation, and Hypogammaglobulinemia. As soon as Myles was born, he went into complete heart failure due to severe valve regurgitation. He was given an end of life diagnosis at 4 days old and after proving to the doctors that he was not giving up and would fight with everything he had, Myles listed for heart transplant. June 11th, 2023, Myles received his Hero Heart. He is just over 1 year post heart transplant and pushing boundaries every day.
Please nominate your Born Abel child as a Friend of the Month! We would love to feature them on our social media pages, illustrate them, make a reel with their story, and send them a special gift in the mail!
FIll in this form to nominate your child today!
